Each Monday, Disability Fieldnotes will publish a Week in Review to highlight key news and media pieces from the previous week that cover disability, anthropology, and related themes. See something missing? Let me know! Readers are encouraged to fill in any gaps by adding additional links in the Comments section. A little knowledge sharing never hurt anyone.
Here are a few highlights from last week:
Chemicals, Limited Regulations, and Neurodevelopmental Disabilities: Researchers from Harvard’s School of Public Health and the Mount Sinai Icahn School of Medicine published a piece in The Lancet Neurology arguing for a link between industrial chemical use and the alleged increase in neurodevelopmental disabilities. The authors do not mince words, discussing the “pandemic of developmental neurotoxicity” and explicitly calling for aggressive regulations on chemicals. This is a scary, yet not entirely surprising, study. I’m curious to see its reverberations. The article itself is paywalled, but you can find an overview at Disability Scoop, as well as here and here.
Real Talk – The (Economic) Costs Facing Families of Children with Complex Care Needs: Amanda Rose Adams’ piece for the NYT Motherlode blog, “The Price of a Child I Wouldn’t Let Go,” is a must-read for anyone interested in maternal and child health, public health, the political economy of health care, life after the NICU, and caregiving. I would also recommend it for anyone interested in using narrative journalism to tell their story in a way that is simultaneously emotionally honest and unflinchingly political. Adams combines her moving personal story as the mother of a child born with heart defects with a biting critique of escalating health care costs in the U.S.
“I once believed when our son’s health stabilized, our medical expenses would decline, but inflation proved me wrong” – Amanda Rose Adams
Thoughts on Academics, Writing, and the World of Jargon: Joshua Rothman’s New Yorker blog piece, “Why Is Academic Writing So Academic?” is perhaps the best response I’ve seen to the recent NYT op-ed in which Nicholas Kristof chided academia for being insular, theoretical, and inaccessible. Rothman sympathizes with both sides of the debate, but offers an excellent discussion of the system of academic without blaming its practitioners.
“The problem with academia isn’t that professors are, as Kristof wrote, “marginalizing themselves.” It’s that the system that produces and consumes academic knowledge is changing, and, in the process, making academic work more marginal” – Joshua Rothman
Depression Across Cultures: Writer Andrew Solomon’s story “The Refugees” was featured recently on The Moth Radio Hour. This piece is an anthropologist’s dream: cross-cultural discussions of depression in a post-conflict society? We can’t help ourselves! Seriously, though, it’s well worth a listen. Solomon is at the forefront of disability and mental health coverage in mainstream nonfiction, and I’m happy to see him continue to share his stories and insights. If you haven’t already, you have to read his 2012 book Far from the Tree, which won the National Book Critics Circle Award for its unflinching and introspective portraits of parents of children with disabilities (and a few other groups, as well).
The interweb was buzzing with the revelation that a sedentary lifestyle can lead to an increased risk of physical disabilities as one ages. Did we not know this? Doesn’t everyone have a neighbor/family friend/relative who lived to be 100 and was in great shape until the very end, and it was widely attributed to the individual’s activity level? I appreciate this study as a scare piece to send to my less healthfully-minded loved ones, yet I can’t shake the feeling that this is an instance of science telling us what we already know. As long as we use the knowledge to our advantage, I shall keep my further comments to myself.
Philadelphia’s Mayor signed a bill mandating that the city replace the outdated and offensive R-word with the term “intellectual disability.” A small but important and highly visible step. Perhaps I should send this link to the woman who cut my hair on Saturday, since she appeared to be unaware of this linguistic shift around us.
Full-time and contingent faculty banded together in a two-day strike at the University of Illinois at Chicago to demand a much-needed raise in adjuncts’ wages.
The National Council on Disability joined forces with a bipartisan group of 130 members of Congress to call for a much-needed increase in federal funding for Individuals with Disabilities Education Act (IDEA). IDEA is the cornerstone of special education legislation and is critical for children with disabilities, yet is woefully underfunded. Curiously, although Congress committed to fun 40% of the country’s public special ed bills when IDEA was enacted in 1975, the actual figure never topped 19%.
Texas gubernatorial candidate Greg Abbott tries to have his Conservative cake and eat it, too. He switch-hits disability worlds, moving between a public story of triumph over his own disability and a political commitment to fighting the implementation of the ADA tooth and nail. For more, read this recent editorial and also this piece from Austin’s very own Burnt Orange Report.